Comments for Living With Crohns Disease http://www.living-with-crohns-disease.com Living With Crohns Disease Wed, 10 Mar 2010 10:49:25 +0000 http://wordpress.org/?v=2.7.1 hourly 1 Comment on Barium Enema by John http://www.living-with-crohns-disease.com/crohns-barium-enema/comment-page-1/#comment-416 John Tue, 23 Feb 2010 01:10:14 +0000 http://nettogrid.com/living-with-crohns-disease.com/?p=153#comment-416 No, its not painful. But its insanely embarrassing. I had one a week ago and I can barely look at myself in the mirror. Having to crap barium in front of another person...I'd rather cut my finger off than go through that again. No, its not painful. But its insanely embarrassing. I had one a week ago and I can barely look at myself in the mirror. Having to crap barium in front of another person…I’d rather cut my finger off than go through that again.

]]> Comment on Living With Crohns Disease by lindsey http://www.living-with-crohns-disease.com/comment-page-1/#comment-415 lindsey Mon, 22 Feb 2010 23:09:20 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-415 hi i have been suffering from cronic crohns for 10 years this morning the pain was so server i couldn't get out of bed and i cryed all the way down stairs as i had to try my harest to move im a single mother of two and even my gp isnt helping my consultant is ready to do my next op on waiting list now but my gp is wanting my pain reliefe stoped wat can i do i cant manage day to day life without pain reliefe hi i have been suffering from cronic crohns for 10 years this morning the pain was so server i couldn’t get out of bed and i cryed all the way down stairs as i had to try my harest to move im a single mother of two and even my gp isnt helping my consultant is ready to do my next op on waiting list now but my gp is wanting my pain reliefe stoped wat can i do i cant manage day to day life without pain reliefe

]]> Comment on My Crohn’s Story by lindsey http://www.living-with-crohns-disease.com/my-crohns-story/comment-page-1/#comment-414 lindsey Mon, 22 Feb 2010 22:32:23 +0000 http://nettogrid.com/living-with-crohns-disease.com/?p=9#comment-414 hi can any one help i have been suffering from a servere case for years due to have my next op but my gp is really makin me depressed they dont believe im in as muh pain as i say and they want to stop my meds. i saw my consultant 4 weeks ago and had my results to show how agressive it is but no one will help wat do i do i cant stand this pain its ruining my family life hi can any one help i have been suffering from a servere case for years due to have my next op but my gp is really makin me depressed they dont believe im in as muh pain as i say and they want to stop my meds. i saw my consultant 4 weeks ago and had my results to show how agressive it is but no one will help wat do i do i cant stand this pain its ruining my family life

]]> Comment on Fistulas by Mary Ann Dodson http://www.living-with-crohns-disease.com/fistulas/comment-page-1/#comment-413 Mary Ann Dodson Sat, 20 Feb 2010 22:52:38 +0000 http://nettogrid.com/living-with-crohns-disease.com/?p=39#comment-413 I have had crohn's for over twenty years. I got a huge fistula not long after being diagnosed with crohn's disease. It has never healed. Infact, It has gotten much worse through the years. I have actually had glue put in my rectum to aid in healing the fistulas, but it is not working. I'm going to talk to my doctor about the new drug Humira. I am so fed up with these fistulas. I don't even like to go anywhere. Through dye test they found out that fistulas were connected to my vagina. I actually had feces going through my birth canal. Is that Yucky or what? I have had crohn’s for over twenty years. I got a huge fistula not long after being diagnosed with crohn’s disease. It has never healed. Infact, It has gotten much worse through the years. I have actually had glue put in my rectum to aid in healing the fistulas, but it is not working. I’m going to talk to my doctor about the new drug Humira. I am so fed up with these fistulas. I don’t even like to go anywhere. Through dye test they found out that fistulas were connected to my vagina. I actually had feces going through my birth canal. Is that Yucky or what?

]]> Comment on Living With Crohns Disease by Karen Marais http://www.living-with-crohns-disease.com/comment-page-1/#comment-409 Karen Marais Tue, 16 Feb 2010 20:49:01 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-409 I was diagnosed with Crohns in 2001. I,ve been on Asacol which stopped working, had a colonoscopy two days ago and my colon is in a very bad state, my doctor says severe. He has now put me on a course of prednisone and Azamun. Can anyone who has taken Azamun tell me about their experiences on this drug because the written side effects sounds scary. I was diagnosed with Crohns in 2001. I,ve been on Asacol which stopped working, had a colonoscopy two days ago and my colon is in a very bad state, my doctor says severe. He has now put me on a course of prednisone and Azamun. Can anyone who has taken Azamun tell me about their experiences on this drug because the written side effects sounds scary.

]]> Comment on Living With Crohns Disease by Willie "Dennis" Green http://www.living-with-crohns-disease.com/comment-page-1/#comment-396 Willie "Dennis" Green Wed, 27 Jan 2010 02:24:21 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-396 I have had Crohn's for about 30 years and I am 63 years old. I just got over an eposide. I was in the hospital for 6 days. I am looking at taking a herbal medicine called "Primal Defense" the lady at the health food store says that people swear by it. I am on the down side (tapering off) of Predisone 20 mg for a week then 10 then 5 and off of it. I hate to take it. Has anyone taken this medicine called "Primal Defense". MY doctor gave me some "Align" which is a probiotic non prescription medication, but I have heard that the Primal Defense is much better. Has anyone taken it or is taking it or heard comments about it? PLEASE let me hear from you. I also wondered how KEN CHEEK avoided surgery for an intestional blockage twice. I have had two surgeries for blockage so far. THANKS for any replies. Dennis I have had Crohn’s for about 30 years and I am 63 years old. I just got over an eposide.
I was in the hospital for 6 days.
I am looking at taking a herbal medicine called “Primal Defense” the lady at the health food store says that people swear by it. I am on the down side (tapering off) of Predisone 20 mg
for a week then 10 then 5 and off of it. I hate to take it.

Has anyone taken this medicine called “Primal Defense”. MY doctor gave me some “Align”
which is a probiotic non prescription medication, but I have heard that the Primal Defense is much better. Has anyone taken it or is taking it or heard comments about it?
PLEASE let me hear from you.

I also wondered how KEN CHEEK avoided surgery for an intestional blockage twice.
I have had two surgeries for blockage so far.

THANKS for any replies.
Dennis

]]> Comment on Living With Crohns Disease by John http://www.living-with-crohns-disease.com/comment-page-1/#comment-395 John Mon, 25 Jan 2010 22:03:21 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-395 I'm now 32, and have been dealing with Crohn's for about 1 1/2yrs now. Two days before my honeymoon was over, I got Crohn's. At first I thought it was food poisoning, then I was lactose intolerant, then Giardia. But I finally got diagnosed with a colonoscopy. Before Crohn's, I weighed at my highest 299lbs at 6'2", I now weigh 196lbs. I can't tell you how bad using the bathroom around 15 times a day/night can to do to a person. I have been told, that there are about 5 different versions of Crohn's. I have found that by talking to people about my condition, you start to realize that there are alot of people that themselves or know somebody that has Crohn's. I hope one day, doctors can find a cure for our condition. I’m now 32, and have been dealing with Crohn’s for about 1 1/2yrs now. Two days before my honeymoon was over, I got Crohn’s. At first I thought it was food poisoning, then I was lactose intolerant, then Giardia. But I finally got diagnosed with a colonoscopy. Before Crohn’s, I weighed at my highest 299lbs at 6′2″, I now weigh 196lbs. I can’t tell you how bad using the bathroom around 15 times a day/night can to do to a person. I have been told, that there are about 5 different versions of Crohn’s. I have found that by talking to people about my condition, you start to realize that there are alot of people that themselves or know somebody that has Crohn’s. I hope one day, doctors can find a cure for our condition.

]]> Comment on Causes of Crohn’s by jennifer morano http://www.living-with-crohns-disease.com/causes-of-crohns/comment-page-1/#comment-394 jennifer morano Mon, 25 Jan 2010 16:05:48 +0000 http://nettogrid.com/living-with-crohns-disease.com/?p=17#comment-394 Just when you think you are out of the woods,It comes back like gang busters.I can't stand the steriods. Has anyone heard that omega-3 vitamins helps? Has anyone have any other suggestions then steriods that worked for them? Just when you think you are out of the woods,It comes back like gang busters.I can’t stand the steriods. Has anyone heard that omega-3 vitamins helps? Has anyone have any other suggestions then steriods that worked for them?

]]> Comment on Crohn’s Disease Prognosis by Helga http://www.living-with-crohns-disease.com/crohns-prognosis/comment-page-1/#comment-323 Helga Tue, 05 Jan 2010 12:09:30 +0000 http://nettogrid.com/living-with-crohns-disease.com/?p=19#comment-323 If everybody with the sickness would be as positive as you - it would help them a lot. Greetings from Germany, Helga If everybody with the sickness would be as positive as you - it would help them a lot. Greetings from Germany, Helga

]]> Comment on Colonoscopy by Jeanette http://www.living-with-crohns-disease.com/crohns-colonoscopy/comment-page-1/#comment-322 Jeanette Mon, 04 Jan 2010 21:14:05 +0000 http://nettogrid.com/living-with-crohns-disease.com/?p=139#comment-322 Enjoying your site. I was told at 16 I had Bacteria Parasites, most likely from a cat or water. Not until 30 years later and a trip to the emergency room with a wonderful doctor who told me NOT to let them push me off. She even took a break and followed me out leaving. I had Ins. at this time, not best but ins. She said I am not in the field to determine the cause of your pain and amount of blood you have lost, but push on your provides, I don't think they have tested what they need. Continue no matter what they say. Push them. It took a year of this, that, the barium enemas to colonoscopy with diff. drs to that Dr. Morris says you have Crohn's and is in bad way. 4 years, meds, remicade and pain still followed but better. (i got cataracts from steriods, surgery) i continued as you stated ok, living with crohns,(LWC) never real remission. We started cutting my meds and still ok. Them I got told I was losing my ins and could not find any to take me. I purchased the max meds i could and started even more whenning. But keeping that to stop he felt would be even worse. I have gone 5 more years in LWC with some flares,but able to continue. I lost my job in late Oct 2009, lost my car ins, solded my car to try to pay rent. I have now been in total pain, can't move but in pain. worse is I wish I could go to the bathroom. (not just go, sit, cry in pain for a drop) I would love to have the 20 trips, not this. yes, Stress, diet and activity have change more them I thought would ever. I love to read others comment, hoping to find something that will help me. Yes, what is right for one does not mean right for you, but if what helps them is not something you know hurts you, it is worth a try. It can't get worse then I hurt now. I don't know if you print all your comments, this you can or not, I have been sort of forward. If you want to email me please do. Oh, Mark said you can contact him in his comments, was that to you or your viewers? if I am ok with others contacting me how do you do that? Can they email direct or can you set up a thing that you comments to others? Thanks again for letting me vent today. Enjoying your site. I was told at 16 I had Bacteria Parasites, most likely from a cat or water. Not until 30 years later and a trip to the emergency room with a wonderful doctor who told me NOT to let them push me off. She even took a break and followed me out leaving. I had Ins. at this time, not best but ins. She said I am not in the field to determine the cause of your pain and amount of blood you have lost, but push on your provides, I don’t think they have tested what they need. Continue no matter what they say. Push them. It took a year of this, that, the barium enemas to colonoscopy with diff. drs to that Dr. Morris says you have Crohn’s and is in bad way. 4 years, meds, remicade and pain still followed but better. (i got cataracts from steriods, surgery) i continued as you stated ok, living with crohns,(LWC) never real remission. We started cutting my meds and still ok. Them I got told I was losing my ins and could not find any to take me. I purchased the max meds i could and started even more whenning. But keeping that to stop he felt would be even worse. I have gone 5 more years in LWC with some flares,but able to continue. I lost my job in late Oct 2009, lost my car ins, solded my car to try to pay rent. I have now been in total pain, can’t move but in pain. worse is I wish I could go to the bathroom. (not just go, sit, cry in pain for a drop) I would love to have the 20 trips, not this. yes, Stress, diet and activity have change more them I thought would ever.
I love to read others comment, hoping to find something that will help me. Yes, what is right for one does not mean right for you, but if what helps them is not something you know hurts you, it is worth a try. It can’t get worse then I hurt now.
I don’t know if you print all your comments, this you can or not, I have been sort of forward. If you want to email me please do.
Oh, Mark said you can contact him in his comments, was that to you or your viewers? if I am ok with others contacting me how do you do that? Can they email direct or can you set up a thing that you comments to others? Thanks again for letting me vent today.

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