Comments on: Living With Crohns Disease http://www.living-with-crohns-disease.com Living With Crohns Disease Fri, 12 Aug 2011 00:32:11 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Sibyl Pinnock http://www.living-with-crohns-disease.com/comment-page-2/#comment-5159 Sibyl Pinnock Fri, 12 Aug 2011 00:32:11 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-5159 I'VE BEEN LIVING WITH CROHNS DISEASE FOR 16 YEARS NOW. FIRST I WAS DIAGNOSED WITH UC AND GOT MY FIRST SURGERY FOR A TOTAL COLECTOMY PLUS A JPOUCH PLACED,THIS DISEASE IS SUCH A PAIN SOMETIMES I AM SO DEPRESS HARDLY GOES ANYWHERE BUT I'M STAYING STRONG. OVER THE YEARS I'VE GOTTEN OVER 12 SURGERIES RESECTION,ILEOSTOMY BAGS,HERNIA REPAIRS FISTULA REPAIR YOU NAME IT I HAVE GOT IT DONE TO ME. AT THIS MOMENT I THINK I AM IN REMISSION. I PRAY EVERY DAY FOR THE LORD TO GIVE ME HEALTH AND STRENGHT TO GO ON,EVEN WHEN I ATE ANYTHING IT RUNS RIGHT THROUGH MY BODY. RIGHT NOW I AM NOT ON ANY MEDICATION I AM ASKING WHAT IS THE BEST MEDICINE I CAN TAKE AND A GOOD DIET TO GO ON,I AM SO GLAD I SAW THE ADS FOR THIS SITE THANKS AGAIN FOR ANY INFORMATION I CAN GET. I’VE BEEN LIVING WITH CROHNS DISEASE FOR 16 YEARS NOW. FIRST I WAS DIAGNOSED WITH
UC AND GOT MY FIRST SURGERY FOR A TOTAL COLECTOMY PLUS A JPOUCH PLACED,THIS DISEASE IS SUCH A PAIN SOMETIMES I AM SO DEPRESS HARDLY GOES ANYWHERE BUT I’M STAYING STRONG. OVER THE YEARS I’VE GOTTEN OVER 12 SURGERIES RESECTION,ILEOSTOMY BAGS,HERNIA REPAIRS FISTULA REPAIR YOU NAME IT I HAVE GOT IT DONE TO ME. AT THIS MOMENT I THINK I AM IN REMISSION. I PRAY EVERY DAY FOR THE LORD TO GIVE ME HEALTH AND STRENGHT TO GO ON,EVEN WHEN I ATE ANYTHING IT RUNS RIGHT THROUGH MY BODY. RIGHT NOW I AM NOT ON ANY MEDICATION I AM ASKING WHAT IS THE BEST MEDICINE I CAN TAKE AND A GOOD DIET TO GO ON,I AM SO GLAD I SAW THE ADS FOR THIS SITE THANKS AGAIN FOR ANY INFORMATION I CAN GET.

]]> By: Felicity http://www.living-with-crohns-disease.com/comment-page-2/#comment-4386 Felicity Tue, 28 Jun 2011 04:29:42 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-4386 I've been diagnosed with Chron's when I was 14 years old accidentally when I was rushed for an appendix surgery. I was briefly on Asacol, but chose not to take it as I felt like it worsened my symptoms. My infection is from the start of the small intestine, I'm 29 years old now, have 2 lovely children and have lived a close to normal life (maybe I just got used to the pain) However, I haven't been looking after my disease as properly as I should, I basically ignored it for 10 years. Now after the push of my over concerned parents I made the step to see a doctor for a check up. I went for the usual, Stool testing (yes blood was found), Colonscopy - which by the way was one of the most terrible experiences of my life, they took around 10 biopsies which i could feel, my insides are pretty sensitive to "stretching". I will be going for a MRI to see the extent of my chron's, as the valve that seperates my small from my large intestine has almost grown shut, only 1.4mm wide! I'm due for an operation to remove/replace that area, fingers crossed that my once "normal" live won't turned upside down. Well, just thought I'll enter my bit... :) I'll see what happens after my surgery, I hope however that it doesn't go from ok to absolute worst like for some ppl I've read in this blog... :S I’ve been diagnosed with Chron’s when I was 14 years old accidentally when I was rushed for an appendix surgery. I was briefly on Asacol, but chose not to take it as I felt like it worsened my symptoms. My infection is from the start of the small intestine, I’m 29 years old now, have 2 lovely children and have lived a close to normal life (maybe I just got used to the pain) However, I haven’t been looking after my disease as properly as I should, I basically ignored it for 10 years. Now after the push of my over concerned parents I made the step to see a doctor for a check up. I went for the usual, Stool testing (yes blood was found), Colonscopy – which by the way was one of the most terrible experiences of my life, they took around 10 biopsies which i could feel, my insides are pretty sensitive to “stretching”. I will be going for a MRI to see the extent of my chron’s, as the valve that seperates my small from my large intestine has almost grown shut, only 1.4mm wide! I’m due for an operation to remove/replace that area, fingers crossed that my once “normal” live won’t turned upside down. Well, just thought I’ll enter my bit… :) I’ll see what happens after my surgery, I hope however that it doesn’t go from ok to absolute worst like for some ppl I’ve read in this blog… :S

]]> By: samantha http://www.living-with-crohns-disease.com/comment-page-2/#comment-4024 samantha Wed, 01 Jun 2011 03:55:33 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-4024 I have been battling with crohns since march 2010 and thank God I am becoming more educated on diet and natural cures for crohns. Read "Patient Heal Thyself" change your diet eat all organic, take probiotics, stop eating and drinking dairy, drink tea chamomile, licorice root, ginger, and peppermint, cod liver oil, coconut oil, and lots of omega 3's in eggs, fish ect, and stick to a gluten free diet. My doctor wants me to go on humira but I want to HEAL myself from this disease not SUPRESS it with medication. Thank God I am feeling healthier than ever still battling crohns but i can feel i am healing internally :) Get informed and look for alternatives God Bless!! I have been battling with crohns since march 2010 and thank God I am becoming more educated on diet and natural cures for crohns. Read “Patient Heal Thyself” change your diet eat all organic, take probiotics, stop eating and drinking dairy, drink tea chamomile, licorice root, ginger, and peppermint, cod liver oil, coconut oil, and lots of omega 3′s in eggs, fish ect, and stick to a gluten free diet. My doctor wants me to go on humira but I want to HEAL myself from this disease not SUPRESS it with medication. Thank God I am feeling healthier than ever still battling crohns but i can feel i am healing internally :) Get informed and look for alternatives God Bless!!

]]> By: Sharon http://www.living-with-crohns-disease.com/comment-page-2/#comment-3925 Sharon Mon, 23 May 2011 18:57:11 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-3925 My grandson found out in Jan that he has Crohns and Ulcerative colitis. He apparently has had this for many years. He is 10 years old. His condition has worsened and he is going to be put on Remicade. They are weaning him off the meds he is taking and the steroids. i am very concerned about the IV treatments but I realize he is so sick and the dr has to do what he feels best. I appreciate this site. He has never been a good eater and has never been very big. He barely weighs over 60 lbs. now. I will check back often in case someone else has experience with the Remicade IV's. Thank you. My grandson found out in Jan that he has Crohns and Ulcerative colitis. He apparently has had this for many years. He is 10 years old. His condition has worsened and he is going to be put on Remicade. They are weaning him off the meds he is taking and the steroids. i am very concerned about the IV treatments but I realize he is so sick and the dr has to do what he feels best. I appreciate this site. He has never been a good eater and has never been very big. He barely weighs over 60 lbs. now. I will check back often in case someone else has experience with the Remicade IV’s. Thank you.

]]> By: Teresa Newberry http://www.living-with-crohns-disease.com/comment-page-2/#comment-3668 Teresa Newberry Wed, 27 Apr 2011 15:43:02 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-3668 I have lost one sister to Crohns. I have another sister who is walking the road of complications of Crohns now. She has a fistula that caused her to get septic. She also has ended up with a colostomy that she would prefer not to have. She is living in a nursing home at the age of 49 and wants to be out on her own with her children. The problem is the fistula is still there. I need to get some ideas of how to heal the fistula. So that she could possibly have her colostomy reversed. Any suggestions would be helpfiul. I have lost one sister to Crohns. I have another sister who is walking the road of complications of Crohns now. She has a fistula that caused her to get septic. She also has ended up with a colostomy that she would prefer not to have. She is living in a nursing home at the age of 49 and wants to be out on her own with her children. The problem is the fistula is still there. I need to get some ideas of how to heal the fistula. So that she could possibly have her colostomy reversed. Any suggestions would be helpfiul.

]]> By: Sophie WONGHEN http://www.living-with-crohns-disease.com/comment-page-2/#comment-3615 Sophie WONGHEN Fri, 22 Apr 2011 07:29:25 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-3615 Hi all, Just been reading all your posts, I too have Crohn's, I was diagnosed when i was 22 years old. I am half Chinese, half French, back in HK it was not a known illness to the Oriental community and I had it. I was the 10th case they ever came across in the hospital. I think it came from my French side. I remember losing 2 stones in 2 weeks. Was bleeding a lot, couldnt eat, throwing up. I spent about a month in hospital on steroids bored out of my mind, eating pretty bad 'congee' rice soup that they make typically in Hong Kong, but I guess what got me through was my sense of humour, my youth back then and the eagerness to put this glitch behind me and move on. I was in remission for almost a decade with a few hiccups here and there, forced to do a check up every 2 years by my doc, all ok until I moved countries again. I think stress is a big factor on the symptoms, alcohol and high sugar consumption..... i recently bought a book by Jini Patel and I am working through it in the hopes that i wont have to rely on ASacol anymore. Not that i ever did until the Eresyma Nodosum lumpy crappy bruises came back on my legs. Not had that in 20 years and here they are again. Hate how this stupid illness is crippling me. Having read Jini's book I am begining to understand how i survived all those years ago when i was first struck down. I refuse to let this illness define my life from now on as it didnt in the past. The daily cramps does eventually wear you down and break you down but having read this book has brought me back to my attitude towards this bullying illness. This is only on the first chapter..... hoping the rest of the book will kick my butt back to life again. Been told that i may have to go on remecade, but that it may affect me as a newly engaged wanna be mother one day.... i am trying to stay away from awful drugs as long as i can so i can fulfill my dream of being a mum one day.... Hi all,

Just been reading all your posts, I too have Crohn’s, I was diagnosed when i was 22 years old. I am half Chinese, half French, back in HK it was not a known illness to the Oriental community and I had it. I was the 10th case they ever came across in the hospital. I think it came from my French side. I remember losing 2 stones in 2 weeks. Was bleeding a lot, couldnt eat, throwing up. I spent about a month in hospital on steroids bored out of my mind, eating pretty bad ‘congee’ rice soup that they make typically in Hong Kong, but I guess what got me through was my sense of humour, my youth back then and the eagerness to put this glitch behind me and move on. I was in remission for almost a decade with a few hiccups here and there, forced to do a check up every 2 years by my doc, all ok until I moved countries again. I think stress is a big factor on the symptoms, alcohol and high sugar consumption….. i recently bought a book by Jini Patel and I am working through it in the hopes that i wont have to rely on ASacol anymore. Not that i ever did until the Eresyma Nodosum lumpy crappy bruises came back on my legs. Not had that in 20 years and here they are again. Hate how this stupid illness is crippling me. Having read Jini’s book I am begining to understand how i survived all those years ago when i was first struck down. I refuse to let this illness define my life from now on as it didnt in the past. The daily cramps does eventually wear you down and break you down but having read this book has brought me back to my attitude towards this bullying illness. This is only on the first chapter….. hoping the rest of the book will kick my butt back to life again. Been told that i may have to go on remecade, but that it may affect me as a newly engaged wanna be mother one day…. i am trying to stay away from awful drugs as long as i can so i can fulfill my dream of being a mum one day….

]]> By: Samantha http://www.living-with-crohns-disease.com/comment-page-2/#comment-3535 Samantha Sun, 10 Apr 2011 16:11:27 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-3535 i was diagnosed with Chron's in September and I'm 18. i never even heard of the disease before i thought it was just my appendix. I've tried a few medicines like asacol . my doctor told me to try others but there so expensive and i don't have that kind of money. i also heard remicade can cause lymphoma so i don't know if i want that risk. i thought about surgery and thought that would be the best but my chron's is in the small ileum and it is said to be in one spot but the doctors are unsure and think it will mostly come back. any suggestions on what i should try?? i was diagnosed with Chron’s in September and I’m 18. i never even heard of the disease before i thought it was just my appendix. I’ve tried a few medicines like asacol . my doctor told me to try others but there so expensive and i don’t have that kind of money. i also heard remicade can cause lymphoma so i don’t know if i want that risk. i thought about surgery and thought that would be the best but my chron’s is in the small ileum and it is said to be in one spot but the doctors are unsure and think it will mostly come back. any suggestions on what i should try??

]]> By: Michelle Rice http://www.living-with-crohns-disease.com/comment-page-2/#comment-3512 Michelle Rice Thu, 07 Apr 2011 18:08:01 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-3512 I have had crohn's for 8 years and was a former fedex employee at the memphis corporate office and was working extremely long hours with a new baby i planned for who was about 3 at the time. I left work on a stretcher three times rushed to the hospital with extreme pain, diarrhea and vomiting. Nobody in my family has it. I think extreme stress from many many different factors. I voluntarily quit fedex in 2003 after missing so much work and had a boss who hated me and stayed on my case and stressed me severely. The boss who hired me/prmoted me in that group got reorganized as a manager of a new group. She was promjoted as my new manager and hated me but could find little wrong with my work but constantly threatenend to GET ME so to speak. I was severely stressed and ending up quitting. My case seems so familiar to the comment posted on feb 18, 2011 by a michelle and it was to Heidy. I have been denied disability three times and when lost my last 8th job since quitting fedex early november 2010. It was the very last day that I could legally appeal my third denial which i did. I was terminhated from this last job due to a hospital admission of only three day;s came back to work got everything caught upa nd got fired. Shame on you, Ultimate Dental, Inc. IN memphis, tn.Michelle, please contact me at ricemichelle1969@yahoo.com. I need your advice on my case. Thank you so very much. I have had crohn’s for 8 years and was a former fedex employee at the memphis corporate office and was working extremely long hours with a new baby i planned for who was about 3 at the time. I left work on a stretcher three times rushed to the hospital with extreme pain, diarrhea and vomiting. Nobody in my family has it. I think extreme stress from many many different factors. I voluntarily quit fedex in 2003 after missing so much work and had a boss who hated me and stayed on my case and stressed me severely. The boss who hired me/prmoted me in that group got reorganized as a manager of a new group. She was promjoted as my new manager and hated me but could find little wrong with my work but constantly threatenend to GET ME so to speak. I was severely stressed and ending up quitting. My case seems so familiar to the comment posted on feb 18, 2011 by a michelle and it was to Heidy. I have been denied disability three times and when lost my last 8th job since quitting fedex early november 2010. It was the very last day that I could legally appeal my third denial which i did. I was terminhated from this last job due to a hospital admission of only three day;s came back to work got everything caught upa nd got fired. Shame on you, Ultimate Dental, Inc. IN memphis, tn.Michelle, please contact me at ricemichelle1969@yahoo.com. I need your advice on my case. Thank you so very much.

]]> By: ben edgar http://www.living-with-crohns-disease.com/comment-page-2/#comment-3464 ben edgar Mon, 28 Mar 2011 10:49:30 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-3464 hi im wondering can i still do heavy lifting with having crohns disease hi im wondering can i still do heavy lifting with having crohns disease

]]> By: Tricia http://www.living-with-crohns-disease.com/comment-page-2/#comment-3124 Tricia Tue, 22 Feb 2011 23:38:14 +0000 http://nettogrid.com/living-with-crohns-disease.com/?page_id=3#comment-3124 I just found out that my friend has crohn's disease and I've been doing research but my question is, is there anything I can do as a friend I want to be there for her and I want to help however I can ...... any advise? I don't want to be pushy I just want her to know I am there for whatever. PLEASE HELP I just found out that my friend has crohn’s disease and I’ve been doing research but my question is, is there anything I can do as a friend I want to be there for her and I want to help however I can …… any advise? I don’t want to be pushy I just want her to know I am there for whatever. PLEASE HELP

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